Charcot Marie Tooth Disease

[Exdeltalady]

Hi! Does anyone with CMT experience a warm water feeling in the feet, along with some burning? I have recently experienced this while beginning an exercise routine that is consisting of a lot of walking. I am wondering if perhaps it is my body's way of telling me that I am walking too much.
I am not sure what kind of CMT I have but have been diagnosed for about ten years. I am fifty years old and am female. Overall, I am lucky in the sense that my symptoms are manageable. I do have a left drop foot and can only wear flat shoes.

[yreva]

I am 52 years old and just found out that I have CMT. It started out with my heels hurting so bad that I could hardly get out of bed in the mornings. I feel now it is going into my legs and hands because of the pain in the nerve endings. My Dad and My Grandmother and Great Mother had this same disease.

I try to deal with this everyday but the doctor has ordered a scooter for me and this has devastated me.

I have always been so active and love to work outside and will have to get use to doing things in a different manner. I have a lot of burning in my feet also in the morning and sometimes the whole day long. I hope that your CMT doesn't progress any further. Email me sometime.

Sincerely,

Gerri J.

[cookie4020]

Hi,
Do you have deep callouses on your feet? that causes the burning. my doctor uses a scalpel to gently cut them off every few weeks. I go in limpling in pain & come out with a big smile! also you can soak them & cut them off yourself but I don't recommend it unless you really have a steady hand.
Good Luck,
Cookie

[eban]

I have the burning in my feet 24/7 it is very annoying hard to find cmfortable shoes always feels like there is something in my shoe. The burning started 6 years ago and I was just diagnosed with CMT in November 2007 after many misdiagnoses. I found out about CMT from my local newspaper in a column called Dr. Donahue the had Phone # to call CMT society. which told me I had every symptom associated with CMT thank u Eban